Parenting the special needs...

At A Glance...

This is a blog dedicated to my kiddos, Isabell and William. These amazing kids were born extra unique and one of a kind. It's currently unclear what Isabell and William's genetic disposition is- but they have faced many developmental and medical challenges. They each face their different challenges, but they are so much alike. We really think Isabell and William have the same un
diagnosed genetic syndrome. With a combined 24 hospitalizations, and 20 surgical procedures between these Warrior Kiddos, their needs are extra ordinary, and they are spectacular little children. I am the luckiest mom alive, and we are #leonfamilyaz

As I have time, I like to escape to this blog and give my readers a sneak peek into the window of our lives. Happy Reading!



Tuesday, August 7, 2012

It's quiet tonight.

Tonight, it's quiet. I was super sleepy and I was going to hit the sack- but I got a little burst of energy I guess which is making me think about the past two weeks. So much has happened in the last two weeks, and tonight is a very peaceful and quiet night.

Last time I blogged was the day that William had a head injury (7/26) from big sister 'helping' him get out of his high chair while I was in the shower. Our Wild Man has been doing great since the fall, you'd never know it happened!

On a sad note, on the very same day that William went to Phoenix Children's Emergency Department with the head injury, My Grandma Sara Jones was transported to the Payson Hospital Emergency Room with a swollen and very bruised leg.

As many know- My Grandma Jones had been facing some health challenges (aside from her little body being old and frail). She spent some time in the hospital in June, and was then spending some time in the Rehabilitation Unit in one of Payson's Care Homes. The goal at the Rehab Unit was to regain her strength she had lost during her hospitalization and surgery and learn to care for her newly placed colostomy and colostomy bag. She had good days, and bad days at the Rehab Unit. In late mid-late July she was having trouble with her leg. It seemed to be getting better, then all of a sudden was swollen and bruised. She wasn't complaining about her leg too much, and on July 26 family urged her to go to the Emergency Room to have the leg checked out. She was admitted to the hospital and a blood clot was discovered in her leg, as well as MRSA. On July 27, I called my Grandma on her cell phone around 9am. I wanted to assure her if they can get her MRSA under control, that there should be no need to worry about that. I also wanted to chat with her! I had gone up to the Care Home to visit her the Friday before (7/19) and I wanted to tell her that I wanted to come visit but since she was in the hospital I'd better wait and not come up with my kiddos. She agreed that we should stay home, especially since William had just fallen the day before! I chatted with her for a few, and she said "I love you Crystal, give those kids a kiss for me!" and I told her "Love you too Grandma, see you soon!"
On Saturday July 28 My Grandma was having a good day, and in the afternoon is when she became un-responsive. After being rushed to ICU it was determined that she had been bleeding internally from an unknown source. After all her kids (my mom, Aunt and Uncles) and Grandpa gathered around and said their goodbye's, she officially passed away in the early morning hours of Sunday July 29.

My mom, Aunt, Uncles and Grandpa did a super great job arranging the funeral and services for my Grandma which were held on Aug 3 in Payson. It was a special day remembering my sweet Grandma Sara Belle Holder Morris Jones. Although we were celebrating my Grandma and it was a sad day, it was so great to spend time with family and friends!

Later that night (Friday) Richie flew into town from Texas. I drove back from Payson to pick him up from the Airport. It was so nice having my husband home- the kiddos loved it. We had a good weekend.

Isabell started her first day of first grade today- and RIchie was super proud to see her off to school. He's usually out of town working for these occasions! We also had a new home nurse start today to help care for William. I really liked her today, and I am feeling pretty certain that she will be the good fit we are looking for. I like her attitude, she was great with William and she connected with the rest of us. She's here for William- but connecting with the rest of us is a must. This nurse that started today was super friendly and seemed to get along with all of us super good.

Early this afternoon, Richie had to fly back to Texas. He just got back to the RV a little it ago. It was a bummer to send him off, and it's almost a little too quite and too peaceful here tonight at home without my kids and husband doing what they do. Being loud, funny, pestering mom, cooking dinner- all the tings we love to do together. Missing that right about now, and he just left. :(

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