Ryan House Helps Parents of Disabled Children

We stayed at the Ryan House last week and FOX 10 came in a did an amazing little story on Ryan House. This video does a great job showing how great Ryan House is. It shows how much families with kiddos that have life limiting conditions need a place like this in our community.

Ryan House Helps Parents of Disabled Children

There is a fun upcoming event- called The Ryan Houe Run in March. It is a family fun walk/ or a run. I don't know many details off hand, but i will post more information asap. This is a grat way to raise money for our much needed Ryan House which it takes $1.6 million to operate Ryan House yearly and Ryan House relys on donations to keep its doors open to families like mine.

If I could ask a favor to everyone- if you are looking to donate to something much needed in our Arizona Community, think of Ryan House. For ME, for My Family, For WILLIAM. If anyone of my freinds or family would like to know what they can do to help in my time of need- donate to the Ryan House so our family and families alike can catch a much needed break while our special needs kiddo is at one of the most amazing places ever. Check out Ryan House website http://www.ryanhouse.org/ YOU WILL be amazed when you fully understand what Ryan House is!

XoXo

Rub a Dub Dub- Mom quit taking pics of me in the TUB!

It has been a few weeks since I have blogged! I am so happy to say that we have been busy- AT HOME! No hospital stays, and very few clinic visits. Our last hospitalization was December 5-10 2010! After our year of HELL in 2010, I hope 2011 continues on as wonderful as these first 2 months have been. 2011 has been great- I am afraid to say it because I am afraid I will curse our run of good luck, but there you have it I said it. This year has been GREAT. My baby boy has been feeling happy, getting strong and healthy and keeping his butt out of the hospital! He is 15 months old now weighing 15 pounds and is 25 inches long.

You are MY SunShine!

Isabell has also had a great last few weeks. She is loving school. She has the sweetest and most friendly personality, and is such a JOY to call MINE! My neighbor told me the other day that she loves that we are her neighbors because when we are playing outside on Isabell's swinset or just playing in the backyard she loves to hear Isabell's bursts of laughter and friendly and happy personality loudly boasting from our backyard. Her name is Weng-Ling and she grows lots of things in her backyard and she said her plants love to hear us playing outside, that it makes them happy. It was so cute, Weng-Ling is so nice.

Mom's Big Boy

William has really started to become such a big boy lately. He loves to sit up where he can see everything. His head control is getting so much stronger, and I can tell he can see so much more. He just absorbs everything and is one happy go lucky boy.

Love My Girl

I took Isabell tothe ENT Dr. Chapel 2 weeks ago, for her ear tube surgery follow up. Isabell's speech pathologist and Audiologist are still concerned with Isabell's hearing, as well as some other concerns. Her speech pathologist strongly feels like she has what is called a Sub Mucus Cleft Pallet which can affect her speech dramitically making it hard for others to understand her (Which is what we are strongly experiencing currently). Dr. Chapel seemed confident to say he did not see the Sub Mucus Cleft- but our speech pathologist thinks there is something abnormal going on and suggested getting a 2nd opinion by another specialist that she knows (Not and ENT from my understanding). I am very open to seeking the 2nd opinion. AND we are also still in the midst of trying to plan and schedule surgery for her Vascular Ring Repair.

Lookin' Good

Willie boy got a haircut, his 3rd haircut since birth! He has a wild hair doo, look at all the hair I cut off in the background! He is SO HANDSOME! I kiss his cheeks 1,000 times a day! I am so glad he has been feeling so good lately. William RULES! :)

Loungin' in the Grass

The weather has been so mice, taht we spend most of our days outside in the backyard! When I set William up on his comfortable blankets, big sister Isabell wants her spot made up too! William loves it outside, and usually alls asleep!

One Loaded Stroller!

I have been friends with my friend Jena since we were 12, and we try and hang out as much as possible. Her son, Harper is 1 1/2 and the otehr day I went over and picked Jena and Harper up and we had a big day of fun. We had some running around to do and William and Harper were so good the whole day. Isabell was at school- but at lunchtime we picked her up from the Goddard school and we grabbed lunch at Jack in the Box and then drove her to pre-school. It was a good day, with good company.

Princess Isabell

We had to make a royal queen/princess crown for Isabell's pre-school class and this is what we made! She wore it to school so proud, and everyone kept telling her that her Princess rown was beautiful. She was smiling ear to ear and we really had fun making it together.

Happy Valentine's Day!

Isabell's class at Goddard had a Valentine's party, and Isabell was the happiest kid there! They handed out thier Valentine cards etc and ate Pizza! She had such a gun Valentine's day.

HaNdSoMe!

Silly Kids

Richie came home for a short visit this last weekend, and it was so nice to see him. We were really missing him. We are so proud and thankful for all he does for us. We are so lucky- we miss eachother so badly while he is working over in California, and we do wish we could be together more often. We are so lucky that he has the job he has and he stays very busy with the job he does working 6 days a week to make deadlines-but we wish he was working closer to home. Having him home for a weekend here and there gets old. I wish my kiddos could see their dad everyday. It gets boring without daddy around! BUT despite all my hopes and wishes- we are all doing great, keeping healthy. We do have so much to be thankful for, and to be happy about. 

Please keep us in your thoughts and wish and hope that we continue to have Great Days ahead of us. Hope and wish that we get through Isabell's medical issues smoothly, as well as William's upcoming procedures this year. Hope and Wish taht most of 2011 will be spend at HOME!