- 12/18 Saturday---Took William to PCH ED for fever of 104.5, increased O2 needs, and vomiting. Labs were drawn- they were abnormal but not too terribly too abnormal for William. His Urine was clear, RSV swab was clear, his fever subsided but his chest X-Ray showed evidence of a pneumonia. The ED physicians and I discussed the situation. Other than starting William on some sntiobiotics- They did not have a recommended treatment plan. They told me they did not mind at all admitting him for observation, but they also would not mind discharging him so we could go home, start the antibiotics and see what happens!
- 12/20 Monday--- William woke up wheezing terribly. I called his pediatrician, Dr. Berger at 8am and he advised to start a 5 day prednisone steroid burst. I started it at 9am and Dr. Berger said if William's breathing did not improve by 3pm to take him to the ED. William's breathing improved within a few hours- thankfully! So I just decided that he was going to just stay calm and quiet and try to stay relaxed so he didn't have difficulty breathing or have a wheezing attack. He was not feeling great- poor little buddy.
- 12/21 Tuesday--- My sister in law brought my nieces Lydia and Lily over to play with Isabell. The girls had so much fun on Isabells swing in slide playhouse in our backyard. William also was feeling ok, not great- I was still keeping him quiet and comfy. Lydia stayed the night and we had fun playing and making a killer batch of fudge. Richie surprised us that night and got home from California- we were not expecting him until Friday Christmas Eve! Lydia, Isabell and I all went to bed in my big bed and when Richie got home around 11pm, he seen us all cozy and comfy in our room, so he slept in Isabell's room!
- 12/22 Wednesday--- William woke up extremely wheezy and fussy and irritable at around 3:30am. Finally around 4am I decided to give his dose of steroids- and I all along have been giving him his albuterol treatments. He calmed down by 6am, ans we were able to get back to sleep. We all slept in- Richie and I were so tired this day. William did ok all day. the girls and I went out and did some fast and easy Christmas shopping at Fry's gift card center, and went to Target. Later, My sister in law came and picked up Lydia. I went back to Fry's and bought stuff to do some baking, and made some famous candy we call Christmas Crack- It's so yummy and delicious its more addicting than crack!
- 12/23 Thursday--- I woke up at 3:30am with the mind set to give William his dose of steroids before he woke up and got all wound up and throw himself into a wheezing attack. This plan worked out GREAT! WWilliam ended up having as decent day, as we all did.
- 12/24 Friday Christmas Eve--- William woke up early fussy and wheezy. I got up with him and just held him and patted him until he calmed down and went to sleep. Another morning of sleeping! We were again, so tired all day. I called William's pulmonologist now that today was the last day of his 5 day steroid burst and I did not think he was getting any better yet and asked her if she had any recommendations of things I could do here at home. So she said to continue the steroid burst for a full 7 days, and then we will slowly taper him off of them and see how he does. A huge bummer about prednisone lung steroids is that it helps you breath, but it also weakens your immune system. So now I have to be extra extra careful and good at keeping everything cleaned and sanitized, lots and lots and lots of hand washing and my hands are so dry and ouchie!, limiting visitors, and all that fun stuff to try to get him well and keep him well. I have even put several clinic follow ups on hold with our other specialists to keep William home and safe from illness. But anyway- we had a good day and around 4pm Richie went to his Parents annual Christmas Eve family holiday party to go pick up his grandma and bring her to his Aunts house here in Tempe. I dressed Isabell up in her Christmas dress and sent her over to be with the family. then when Richie returned home around 7pm- I went over to the holiday party to see anyone who was still there and get my B-Bell. (Isabell, that's what she calls herself!!) It was a nice day.
- 12/25 Saturday Merry Christmas!--- Had a great day, William was feeling ok- not very energetic and slept quite a bit. Isabell had fun opening gifts, and so did I! Her favorite toy was her light bright from her Great Uncle G! We are so lucky- we were able to make this Christmas extra special and great. We got so many nice gifts as well- we just LOVE our family, they are the best. Richies parents came for Christmas Tamale and Eggs breakfast and we had a nice time. Then Richie started getting our Christmas Ham ready to bake around 10am. My mom, and her husband Tom came for dinner. My brother was here too, and we had a very nice time. Small, low-key but thats the way we had to do it this year and it was the Best Christmas Ever!
- 12/26 Sunday--- William was still wheezing, the worst in the AM's of each day. He woke up fussy and irritable and Richie got up early at 5AM with him and I slept in until 10AM!!! 5 hours of sleep=AMAZING. We just stayed home all day- well that's what we always do! Haha, in the AM I asked Richie what he wanted to do today, and he replied.... Well do you wanna stay home or do you wanna stay home?? Haha- that's our only option! But later that evening he did have to fly back to CA- my brother was here so he sat with William while B-Bell and I took daddy to the AirPlane. It was such a bummer for him to go, our Holiday went by way to fast.
- 12/27 Monday--- William was ok, still wheezy. We had a good day, and we had a visit from my Aunt Marsha in the AM and we had a nice visit.,
- 12/28 Tuesday--- William was ok, still wheezy, but I do feel like he is getting slightly better each day. I sent Isabell to the day care center she goes to, and it is closed for the week, oopsie! William had PT with a new therapist today, and he did great. I only let her do some light ROM and other tactics since William is sick right now. He tolerated it very well, including 2 minutes of modified tummy time!
- 12/29 Wednesday today--- William was pretty good today, maybe even getting back to his happy self- a little more energetic and playful. But still wheezy. Tomorrow is the planned day to stop the steroid burst taper, but again I am nervous to stop the steroid. His wheeze is still pretty bad. And I feel like the steroid id helping. So I put in a call to the pulmonologist again today. Our new plan is to continue all I am doing at home, and to continue slowlyy tapering William off the steroid. So that is where we are today. Tomorrow was supposed to be the last day of the burst, but now Monday is our next projected day to stop the steroids. Gosh, and I sure hope he gets rid of that terrible wheeze by then. Somethings gotta give, really! Isabell had good day, and was trapped inside all day due to the rain. I have been busy constantly cleaning, sanitizing, and keeping this place germ free and trying to sneak in some play time with the kids and resting time here and there as well.
I am ready for the new year, and I have made a New Years resolution. I feel like I do great at the job at hand I have. But My New Years Resolution is to become even more organized with William's medical ventures- and most of all I have put his health and check ups as priority and I have put Isabell's health and check ups on the back burner. In 2011 I am going to strive to keep up On Isabell's health, check ups, and strive to become more involved with her preschool class. Isabell is such an amazing little girl, and when I say I put her on the back burner this lat year, she has taken it very well. Always just going with the flow, and never complains. She is always smiling her beautiful smile from ear to ear, accompanied by the cutest and sweetest giggle. I am so lucky to have my little B-Bell. She is silly, but a great big sister- she loves William so much. Despite all William's issues, he is one lucky little boy. He has the best Daddy, sister and mommy and we all have So Much To Be Happy About and Thankful For!!! If I don't check back in before New Years eve, Happy New Year Everyone!!!
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