Parenting the special needs...

At A Glance...

This is a blog dedicated to my kiddos, Isabell and William. These amazing kids were born extra unique and one of a kind. It's currently unclear what Isabell and William's genetic disposition is- but they have faced many developmental and medical challenges. They each face their different challenges, but they are so much alike. We really think Isabell and William have the same un
diagnosed genetic syndrome. With a combined 24 hospitalizations, and 20 surgical procedures between these Warrior Kiddos, their needs are extra ordinary, and they are spectacular little children. I am the luckiest mom alive, and we are #leonfamilyaz

As I have time, I like to escape to this blog and give my readers a sneak peek into the window of our lives. Happy Reading!



Sunday, January 9, 2011

Had a GREAT frist week of 2011!

Glad to report an easy goin week here at the Leon house! On Saturday, January 1st, William woke up for the first time since December 20th without wheezing, and without congestion. Richie and I knew it was going to be a great day, William was feeling more like himself. On New Years Day, our cousin Anthony arrived around 3pm, and him, Richie, my brother Lavell and his buddy left for the Fiesta Bowl. Then my mom called me and asked me if the Rummel's could come pick up Isabell and take her to her house for a fun night. Isabell was so excited to see Savannah- Rick and Shannon's oldest daughter who Isabell adores and is obsessed with, it's so cute. So bubba and I had a nice and quiet night- he went to sleep early and i just watched TV and did a whole bunch of nothing!

On Sunday, Richie had to go back to California- and we were sad to have him go. It is so nice when daddy is home.

Over the week, Isabell started back to her school routiene of attending The Goddard School pre-school/daycare 3 mornings per week, and going to her head start pre-school 4 afternoons per week- where she gets to ride the bus! She had a busy and fun week at both school's. And she spent the night with her Nana and Papa and cousins Lydia and Lily on Saturday and got home on Sunday. She had a really fun time. We are ready for next week. I had to take William to the Los Ninos Synagis Clinic on Monday for his Synagis injection- it's a vaccanation against RSV for fragile babies/infants. And we had a clinic visit with oir GI specialist, Dr. Ursea at PCH on Wednesday. She was pleased with his growth, and stability. This upcoming week we see our pulmonologists NP in clinic and our Genetics Specialist Dr. Grebe on Wednesday. William also recieves his therapies, PT and OT weekly here at home. I need to get my DDD support cordinator on the ball and find us a feeding/speech therapist to do weekly therapies. We are not doing any oral feeds right now, but feeding therapy will be much needed in our future. When our OT came the week before Christmas, she had lost her voice slightly and sounded kindof funny and incase she was getting sick I asked her to wear a mask and to wask her hands real good and she did. I didn't think she sounded terrible- but I cannot be too careful and I don't want anyone sick to come into contact with William or the house!

On this past Saturday my mom brought over Granny Thelma to meet William, Themla is my mom's husband, Tom's mom. Her nad Papa Tom live in Yuma and have not seen William. Papa Tom had a cough and did not come, but my mom brought Thelma over and it was so nice to see her, she is the sweetest ever.

I am ready for the new week!

Photos of our week!


HAPPY BOY!



 Loungin!


Big Sister, Little Brother!




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